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Our family’s story: Finding a second home after CLOVES diagnosis
Oliviah, Kollins and Adleigh In July 2013, our family of four crowded into a tiny room at the Women’s Health Clinic in Casper, Wyoming. We were so excited to find out if our third child would be a boy...
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Do I have the strength to be a marathon parent?
Riley Riley Cerabona is a Boston Children’s Hospital patient with a rare vascular anomaly syndrome called CLOVES Syndrome (Congenital, Lipomatous Overgrowth, Vascular malformations, Epidermal nevi and...
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Our patients’ stories: Why research matters to our family
Kristen and Riley By Kristen Davis, the mother of a child with an extremely rare condition called CLOVES syndrome. Boston Children’s Hospital researchers recently discovered the genetic cause of...
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Marathon parenting
Kristen’s daughter Riley was born with a vascular anomaly called CLOVES Syndrome (Congenital, Lipomatous Overgrowth, Vascular malformations, Epidermal nevi and Scoliosis/Skeletal/Spinal anomalies)....
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